Routine checks in PSC (Dr James Ferguson)
PSC is a complex condition and ideally, your care should be managed by someone with an interest in and experience of PSC. While there is no curative treatment, your doctor can monitor your condition and help manage your symptoms using current clinical practice guidelines for cholestatic liver diseases.
If you start to get more symptoms and your PSC is evolving or becoming complex, you should be referred for expert multi-disciplinary assessment. Patients with early, stable disease can be managed in general clinics (BSG/UK-PSC Guidelines Recommendation 16 58).
Your doctor will also discuss with you how he or she will manage your routine PSC healthcare and together you will form a PSC care plan and communicate this to your GP. Your GP should not be expected to know everything about PSC, and therefore it is helpful when your Hepatology/Gastroenterology consultant shares a clear picture of how you will be monitored and what role your GP will play.
Your PSC doctor will also give you information about what to do about concerns and how to contact the clinic.
Routine Care and Monitoring
Once PSC is diagnosed, your doctor will discuss with you and assess the following:
Osteoporosis assessment (bone density)
Symptoms (such as itch, pain and fatigue)
Malabsorption of fat-soluble vitamins (in the case of more advanced PSC)
Clinical trials eligibility
Liver and bile ducts (extent of damage)
ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.
Tips from Dr Andrew Yeoman on managing your healthcare at a time when our healthcare services are under increasing pressure to meet demands.
Statement from PSC Support about the use of vancomycin in the UK.
A summary of the latest PSC care guidelines for Europe.
Join us on 14 January 2023 for a live Q&A on all things PSc with Dr Deepak Joshi
Join us on 17 December 2022 for a live Ask the Expert Q&A session with Dr James Ferguson
Join us 09 November 2022 for a Live Q&A with Dr Simon Rushbrook
Join us for Part 2 of Ask the Expert with Dr Quraishi and Dr Trivedi on 23 May
The 2021 PSC Care Survey launched today. Please take 3-4 minutes to complete it to help us improve care, wherever you live.
UKPSC data shows variation in PSC care across the UK.