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Publication history

Improving the lives of people with primary sclerosing cholangitis

Publication history


Walmsley M, Tornai D, Cazzagon N, et al. Patient-reported quality of care in primary sclerosing cholangitis [published online ahead of print, 2023 Jun 13]. Liver Int. 2023;10.1111/liv.15650. doi:10.1111/liv.15650

Kowdley K, Safer R, Gomel R, Hatchett J, Walmsley M, Burman J, Weinbaum S, Goldsmith K, Kim M, Garner W, McKibben A, Chien E. Impact of pruritus in primary sclerosing cholangitis (PSC): a multinational survey. Journal of Hepatology. 2022 vol. 77(S1): S119–S388

Marcus E, Stone P, Thorburn D, Walmsley M, Vivat B. Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease. Journal of Patient-Reported Outcomes. 2022 Dec;6(1):1-2.

Fatourou E, King D, Hyde S, Walmsley M, Alexander G, Trivedi P, Rushbrook S, Thorburn D, PSC IC. PMO-35 UK national audit on diagnosis and management of colitis in patients with primary sclerosing cholangitis.

Francque SM, Marchesini G, Kautz A, Walmsley M, Dorner R, Lazarus JV, Zelber-Sagi S, Hallsworth K, Busetto L, Frühbeck G, Dicker D. Non-alcoholic fatty liver disease: A patient guideline. JHEP Reports. 2021 Oct 1;3(5):100322.

Zecher B, Buescher G, Willemse J, Walmsley M, Taylor A, Leburgue A, Schramm C, Lohse AW, Sebode M. Prevalence of COVID-19 in patients with autoimmune liver disease in Europe: A patient-oriented online survey. United European Gastroenterol J. 2021

Walmsley M, Matičič M, Butí M. Impact of COVID-19 on the care of patients with liver disease: EASL-ESCMID position paper after 6 months of the pandemic (Lay version). 2021. Available from:

Walmsley M, Butí M. Care of Patients with Liver Disease during the COVID-19 Pandemic (Lay version). 2020. Available from:

Ranieri V, Kennedy E, Walmsley M, Thorburn D, McKay K. The Primary Sclerosing Cholangitis (PSC) Wellbeing Study: Understanding psychological distress in those living with PSC and those who support them. PLoSONE 2020, 15(7): e0234624.

Ranieri V, Kennedy E, Walmsley M, et al. Rare but heard: using asynchronous virtual focus groups, interviews and roundtable discussions to create a personalised psychological intervention for primary sclerosing cholangitis: a protocol. BMJ Open 2019;9:e031417. doi: 10.1136/bmjopen-2019-031417

McKay K, Ranieri V, Walmsley M, et al. O16 Rare but still heard: how innovative methods can enhance research inclusion. BMJ Open 2019;9:doi: 10.1136/bmjopen-2019-QHRN.16

Chapman MH, Thorburn D, Hirschfield GM, Websiet GJ, Rushbrook SM, Alexander GA, Collier J, Dyson AK, Jones DEJ, Patanwala I, Thain C, Walmsley M, Pereira SP. British Society of Gastroenterology and UK-PSC guidelines for the diagnosis and management of primary sclerosing cholangitis Gut.Published Online First: 01 June 2019. doi:10.1136/ gutjnl-2018-317993

Walmsley M, Leburgue A, Thorburn D, Hirschfield G, Trivedi P. Identifying research priorities in primary sclerosing cholangitis: driving clinically meaningful change from the patients’ perspective. Journal of Hepatology. 2019 Apr 1;70:e412-3 [poster]

Gurusamy KS, Walmsley M, Davidson BR, Frier C, Fuller B, Madden A, ...Cowlin M. et al. Top research priorities in liver and gallbladder disorders in the UK. BMJ Open. 2019;9(3):e025045. doi: 10.1136/bmjopen-2018-025045

Goode EC, Clark AB, Mells GM, Srivastava B, Spiess K, Gelson WT, Trivedi PJ, Castren E, Vesterhus MN, Karlsen TH...Walmsley M. Factors Associated With Outcomes of Patients With Primary Sclerosing Cholangitis and Development and Validation of a Risk Scoring System. Hepatology. 2018 Dec 19.

Ranieri V, McKay K, Walmsley M, Senior R, Thorburn D, Kennedy E. Primary sclerosing cholangitis and psychological wellbeing: a scoping review. InSeminars in liver disease. 2018 Nov 22. Thieme Medical Publishers. doi: 10.1055/s-0038-1676099

Trivedi P, Mytton J, Evison F, Kamarajah SK, Reece J, Iqbal T, Cooney R, Thompson F, Walmsley M, Ferguson J, Hirschfield G. A nationwide population-based evaluation of mortality and cancer-risk in patients with ulcerative colitis/primary sclerosing cholangitis–young age at diagnosis and the unmet need to reduce mortality. Journal of Hepatology. 2018 Apr 30;68:S220-1. THU-208

Newsome PN, Cramb R, Davison SM, Dillon JF, Foulerton M, Godfrey EM, Hall R, Harrower U, Hudson M, ... Walmsley M, Yeoman A. Guidelines on the management of abnormal liver blood tests. Gut. 2018 Jan 1;67(1):6-19. doi: 10.1136/gutjnl-2017-314924  Open Access British Society of Gastroenterology

Hirschfield GM,  Dyson JK, Alexander GJM,  Chapman MH , Collier J , Hübscher S,  Patanwala I , Pereira SP, Thain C, Thorburn D,  Tiniakos D, Walmsley M, Webster G, Jones DEJ. The British Society of Gastroenterology/UK-PBC primary biliary cholangitis treatment and management guidelines. Gut. 2018 Mar 28:gutjnl-2017. Open Access British Society of Gastroenterology

Greveson K, Ibarra A, Walmsley M, Thorburn D. Primary sclerosing cholangitis and the role of the clinical nurse specialist. Gastrointestinal Nursing. 2015 Dec 2;13(10):36-45.

Hirschfield, GM, Thain, C, Walmsley, M, Brownlee, A, & Jones, DE. Liver disease in the UK. The Lancet. 2015 385(9967), 503. Open Access doi:10.1016/s0140-6736(15)60192-1

Heggie S. Primary sclerosing cholangitis. Gastrointestinal Nursing. 2012;10(3):8-. doi: 10.12968/gasn.2012.10.3.8.


Not all of these publications are Open Access. Please get in touch if you would like to read them.

For reports, including 'Clinical Need in PSC and Clinically Meaningful Change: What is Important to Patients?', see The voice for patients in PSC research.

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