Testimonials
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
We hold two PSC Information Days per year in different locations throughout the UK. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.
What's next?
Our next Information Day will take place on the 19th October 2024 at the IET Birmingham: Austin Court B1 2NP with Dr Palak Trivedi already confirmed as a guest speaker. Please make sure you are signed up to our newsletter and follow our social media channels so you don't miss future announcements.
Ask the Expert Q&A Sessions
PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.
The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.
What's next?
Wednesday 23 Oct - Prof Iqbal
Professor Iqbel, Professor of Clinical Microbiome at the Queen Elizabeth Hospital, Birmingham, talks to us about PSC-IBD. What it is, how it is different to standard IBD and how it links to PSC.
Monday 2 Dec - Dr Jess Dyson
Dr Jess Dyson, Consultant hepatologist in the Freeman Hospital, Newcastle, looks back at how PSC management and research have changed over the years and then looks to the future to see how things might develop in the years to come.