Testimonials
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
We hold PSC Information Days in different UK locations throughout the year. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.
Ask the Expert Q&A Sessions
PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.
The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.
What's next?
Navigating PSC Care with Dr Andrew Yeoman
Join us for an empowering Ask the Expert session with Dr Andrew Yeoman as he breaks down what high-quality, guideline-backed PSC care involves and how to make the most of your appointments. In this interactive session, Dr Yeoman will translate clinical guidelines into plain language so you understand what they mean for you and your routine care, from essential monitoring to communicating with your medical team.
Thursday 22 October 2026
Time: 7pm (London)
Previous Ask the Expert Sessions
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You can watch (or re-watch) all our sessions on our YouTube channel or by using the links below.
The Road to Effective PSC Treatments
Date: 12 August 2026
Click here to replay session on YouTube
PSC Research Round-Up: Latest Updates from the EASL Congress
Date: 25 June 2026
Click here to replay session on YouTube
Asp-PSC Trial: What Patients Need to Know
Date: 2 March 2026
Click here to replay session on YouTube
AASLD Research Roundup 2026
Date: 13 Dec 2025
Click here to replay session on YouTube
PSC Research: Blood Test for PSC & Bile Duct Cancer with Professor Jesús Bañales & Dr Pedro Rodrigues
Date: 10 July 2025
Click here to replay session on YouTube
EASL Research Q&A
Date: 17 May 2025
Click here to replay session on YouTube
What is PSC and the Asp-PSC trial?
Date: 26 February 2025
Click here to replay session on YouTube
AASLD Research Roundup
Date: 14 January 2025
Click here to replay session on YouTube
Patient Perspectives of Clinical Trials
Date: 23 September 2024
Click here to replay session on YouTube
PSC Research - FARGO Trial with Dr Palak Trivedi and Dr Sarah Al-Shakhshir
Date: 19 March 2024
Click here to replay session on YouTube
PSC Research - Q&A with Dr Palak Trivedi
Date: 23rd October 2023
Click here to replay session on YouTube
