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PSC Support Events

We hold online and in-person events throughout the year

Testimonials

'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'

John: PSC patient, 2018

'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '

Fiona: mother of PSC patient, 2016

'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'

Martine: PSC patient (from 2007)

'Thank you! Thank you! Thank you!'

Jed: rPSC patient, 2018

Information Days

We hold two PSC Information Days per year in different locations throughout the UK. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.

What's next?

We are busy working on our next Information Day and will update this website when we can. To get the information as soon as possible, why not join our closed PSC Support Facebook group or sign up to our newsletter.

Ask the Expert Q&A Sessions

PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.

The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.

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What's next?

What is PSC and the Asp-PSC trial?

Doctor Rushbrook and Professor Khan give us an overview of PSC and the Asp-PSC clinical trial. We also hear from a patient who is taking part in this trial to find out what is involved. Trigger warning: cancer will be mentioned during this webinar.

Book here

Cholangitis and Itch

Cholangitis attacks and pruritus (the dreaded itch) are two symptoms of PSC that we know people worry about. Doctors Thornburn and Hussain will each give a presentation about these symptoms and then answer your questions about them.

Book here

PSC: Past, Present and Future

Dr Jess Dyson, consultant hepatologist at Freeman Hospital in Newcastle, takes us through the timeline of PSC knowledge. Looking at what we thought about PSC in the past, to what we know now and then looking to the future.

Book here

Previous Ask the Expert Sessions

PSC Support YouTube

Find a wealth of information and more videos about PSC on our YouTube channel

Donate

We rely on charitable donations to make our vital work possible

Just diagnosed?

10 things you need to know about PSC

Live your life

Tips on living better
with PSC