To keep the information you add to the app safe, we scramble it with encryption, and then store it in such a way that, in the unlikely event of a system breach, no one would be able to identify you as an individual.

When you request an email Tracker Report, we will email you a link that means your report is downloaded via an encrypted (scrambled) connection. We think this is more secure than sending you an attachment in a standard email.

To protect the data in the app while on your device, it’s up to you to lock it and password protect it to keep it safe.

The app allows you to organise and track important health information such as your medications and symptoms. PSC Support can see this data but we cannot see who it belongs to.

We have systems in place to ensure that when we analyse the high-level health data, we cannot see or access your identifiable health data accidentally or even if we want to because your name and email address are not connected to the high-level data we can access. When we do need to see your name and email address (eg when administering your account), your health data is not linked to it.

The only time PSC Support personnel would be able to see your health data and identifiable details together would be in the event that you make a Subject Access Request (which is your right under data protection regulation). Only specially trained personnel at PSC Support would process this request and your privacy would be respected at all times. To put you in control, all the information in your app is added by you and you can see it at any time. You can also delete your account at any time (go to the Menu/Delete Account). This will delete your account and all its data.

PSC Support will use high-level, de-identified data (such as % of people experiencing fatigue or low mood) in order to support our work to improve services and support for people with PSC and to drive important PSC research. As stated above, when we do this, it is not combined with your name or email address.

To register for the app and to log in, you provide your email address. We will not add your email address to our mailing list for email bulletins unless you have specifically asked us to do so via a specific sign-up form not connected to the app.

No. PSC Support will never share, sell or report the identifiable data of App users (eg names and email addresses) to any outside organisation or third party.

Your privacy is important to us. As an Android user, you will be asked to allow the app to access media and photos on the device when you view a health report PDF (View PDF). This is necessary so that you can download and view the report. However, our app is hardcoded to look at one file path only. This means that there is no possibility that our app can look at other files on your device, even if you give your consent to this.

This consent is not required if you ask for your report via email (tap Email PDF).

Go to App Privacy Policy