How to explain PSC
PSC is complex and difficult to explain. Our infographic makes it easy
PSC is a rare complex disease and not easy to explain.
Share this graphic and video using social media for a basic, easy to understand explanation of PSC.
Rare Disease Day 2022
It's Rare Disease Day on 28th February. It is a day for raising awareness and generating change for the 300 million people worldwide living with a rare disease. The number of people with PSC is challenging to work out, but research estimates that there are only around 56 to 80 people with PSC per million in the UK (prevalence of PSC), and only around seven per million are diagnosed with PSC each year. That's rare! Help us shine a light on PSC this Rare Disease Day by liking and sharing our social media posts about PSC.
Global PSC Awareness Day
Global PSC Awareness Day is on 29 October 2021. See what we are doing and how you can join in here.