PSC Support is the only UK patient organisation dedicated to improving the lives of people affected by primary sclerosing cholangitis (PSC)
We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.
Turning Ambition into Action in 2026:
Our Fortnight in Focus
At PSC Support, we want a world without PSC. We work tirelessly behind the scenes to drive research and improve lives. Here is a snapshot of what we've been up to:
Building Partnerships: We planned our attendance at major liver and gastro events this year to ensure healthcare professionals know about PSC and the guidelines around it.
Empowering our Community: We published our monthly research roundup to keep the community informed about research progress and advocacy news.
Improving Care: We collaborated with partners to develop a standardised care pathway, aiming for consistent care for everyone with PSC.
Organisational Excellence: We discussed how to show our appreciation to our donors in a more personal way.
Organisational Excellence: We provided research impact data to the Association of Medical Research Charities to maintain our high standards of transparency in research.
Organisational Excellence: We strengthened our data management systems to better track the impact of the research projects we fund.
Organisational Excellence: We signed off our budget for 26/27 to ensure we have proper and critical oversight of our spending.
Progressing Research: We updated the Asp-PSC clinical trial sites to ensure PSC patients are up to date on where they can go to take part in the trial and we held a webinar all about it!
Help us find a breakthrough in PSC research
At PSC Support we are doing everything we can to find effective treatments for PSC. Check out our new research plans to dramatically increase the research funding we offer and find out how you can help.
Watch the Mission 2030 tree fill with colour as we fund more PSC research.
