Testimonials
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
We hold PSC Information Days in different UK locations throughout the year. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.
Don't miss the announcement about our next Information Day.
Ask the Expert Q&A Sessions
PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.
The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.
What's next?
PSC Support Ask the Expert: understanding PSC and IBD(opens in new tab)
We’re bringing together two expert speakers for our next Ask the Expert webinar to give you clear, evidence-based answers.
- Dr Rimmer, Consultant in Gastroenterology (Queen Elizabeth Hospital, Birmingham) and Honorary Senior Research Fellow (University of Birmingham)
- Dr Chandni Radia, Research Fellow in IBD (King's College Hospital, London).
Includes a live Q&A where you can ask our panel your questions directly.
Monday 14 September 2026
Time: 7pm (UK time)
Previous Ask the Expert Sessions
The Road to Effective PSC Treatments
Date: 12 August 2026
Click here to replay session on YouTube
PSC Research Round-Up: Latest Updates from the EASL Congress
Date: 25 June 2026
Click here to replay session on YouTube
Asp-PSC Trial: What Patients Need to Know
Date: 2 March 2026
Click here to replay session on YouTube
AASLD Research Roundup 2026
Date: 13 Dec 2025
Click here to replay session on YouTube
PSC Research: Blood Test for PSC & Bile Duct Cancer with Professor Jesús Bañales & Dr Pedro Rodrigues
Date: 10 July 2025
Click here to replay session on YouTube
EASL Research Q&A
Date: 17 May 2025
Click here to replay session on YouTube
What is PSC and the Asp-PSC trial?
Date: 26 February 2025
Click here to replay session on YouTube
AASLD Research Roundup
Date: 14 January 2025
Click here to replay session on YouTube
Patient Perspectives of Clinical Trials
Date: 23 September 2024
Click here to replay session on YouTube
PSC Research - FARGO Trial with Dr Palak Trivedi and Dr Sarah Al-Shakhshir
Date: 19 March 2024
Click here to replay session on YouTube
PSC Research - Q&A with Dr Palak Trivedi
Date: 23rd October 2023
Click here to replay session on YouTube
