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Latest News

Rare Disease Day 2019

28/02/2019
Rare Disease Day

Raising awareness online and on radio.

UK Strategy for Rare Diseases

27/02/2019
Baroness Nicola Blackwood Rare Disease Day 2019

PSC Support calls for a review of the UK Strategy for Rare Diseases.

Opt-out organ donation system approved

26/02/2019
Lets talk about organ donation

Organ donation law is changing in Scotland and England.

Help to get active after transplant

22/02/2019
Refit for Life

A new online programme from the World Transplant Games Federation was launched today to improve fitness, nutrition, wellbeing and quality of life.

UK liver patient community is pulling together

05/02/2019
LPTC 05 Feb PSC Support

The Liver Patients’ Transplant Consortium (LPTC) met today for the benefit of liver transplant patients.

PSC Support works with researchers to improve PSC diagnosis

01/02/2019
Improving PSC diagnosis

We are working with researchers to remove the uncertainty around diagnosing PSC.

Deemed consent one step closer

01/02/2019
Organ donation and PSC

An opt-out system for organ donation could soon become law.

Rare liver diseases across Europe

31/01/2019
RareLiver ERN PSC Support

PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee

Game changer for liver transplantation

18/01/2019
Machine perfusion

Use of machine perfusion machines approved by NICE.

UK-PSC Risk Scores for PSC

03/01/2019
UK-PSC logo

A new 2 year and 10 year UK-PSC risk score tool for PSC.