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Impact of No-Deal BREXIT on PSC patients

PSC Support EU Exit

A no-deal BREXIT impacts medicine, care, research and access to treatment for PSC patients.

A prediction tool for doctors

PSC Presto Mayo

A Prediction Tool for Doctors Predicting risk in PSC: PREsTo Thanks to PSC patients sharing their healthcare data, we are able to learn more about our condition. There is still much more we need to understand to crack PSC, but good news this week is that scientists have been able to create a new prediction toolfor…

A Digital Trustee for PSC Support

Gary Taylor

Gary Taylor joins our Board of Trustees.

Opt Out System for Organ and Tissue Donation in England

NHSBT logo

Consultation response and Government plans to introduce a new opt out system for organ donation in England from spring 2020.

Patient involvement in clinical services and research

Patient involvement in research and care improvement

Wales Hepatology Forum presentation about involving patients.

The impact of colectomy type following liver transplant for PSC


Colectomies and PSC transplant: end ileostomy compared to ileal-pouch anal anastomosis (IPAA).

National Liver Offering Scheme Introduced

NHSBT logo

A new system has been introduced to allocate livers to patients on the liver transplant waiting list.

PSC Support is now a Charitable Incorporated Organisation

Martine Walmsley PSC Support is a CIO

Major constitutional change for PSC Support.

Research begins looking at IBD care after transplant for PSC


First nationwide audit of IBD care delivery following liver transplantation for PSC.

New guidelines for management of liver blood tests

Clinical care guidelines

New British Society of Gastroenterology (BSG) Guidelines have now been published.