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Latest News

Highest Ever Number of Organ Donors Last Year

21/07/2019
NHSBT transplant activity 18-19 rates consent

The annual Organ Donation and Transplantation Activity Report from NHS Blood and Transplant reports was published his month for the year 2018/19.

Liver Patients’ Transplant Consortium Meeting

17/07/2019
LPG Meeting Agenda 17 07 19

Liver patient groups met today to discuss liver transplant related issues and developments.

Maxine Presents the Patient Perspective to Liver Transplant Nurses

12/07/2019

Maxine was recently invited to talk at the South West Liver Nurses study day.

Special Interest Group for Immune-Mediated Liver Disease

11/07/2019
Martine BASL Immune SIG 110719

PSC research priorities presented at the BASL Immune-Mediated Liver Disease Special Interest Group.

Lancet Commission Survey

10/07/2019
ERN WASL Logos

Help improve standards of care for rare liver disease patients and attitudes towards liver disease.

Birmingham Information Day June 2019

01/07/2019

PSC Support held their 2019 Birmingham Information Day on the 22nd June at the Queen Elizabeth Hospital.

Taking Part in Research

28/06/2019
Be part of research

New website launched focusing on clinical trials and taking part in research

Medicine Development Training

16/06/2019
Maxine at EURORDIS training

This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.

Presumed Consent for Scotland

12/06/2019
Organ donation scotland

Another step towards presumed consent organ donation in Scotland.

Cancer Prevention Survey Results

12/06/2019
Aspirin survey results

Survey results published: reducing the risk of cancer is important to people affected by PSC and they are interested in helping reduce the risks of PSC-related cancers.