Volunteer Trustees Wanted
Volunteer Trustees wanted to join the board of PSC Support
CLOSING DATE: 31 March 2026
Applications welcomed and encouraged from everyone regardless of race, age, disability, sex, gender reassignment, sexual orientation, pregnancy and maternity, religion or belief and marriage and civil partnerships.
We are looking for dynamic people who can bring their knowledge and specific skills to help PSC Support meet the needs of people affected by PSC. We welcome applications from all ages and backgrounds.
We have the following Trustee positions open:
- Finance Trustee
- Young Trustee
- General Trustee
We would love to hear from you if you think you have the enthusiasm, commitment and skills to help us achieve our vision.
Turning Ambition into Action in 2026:
Our Fortnight in Focus
At PSC Support, we want a world without PSC. We work tirelessly behind the scenes to drive research and improve lives. Here is a snapshot of what we've been up to:
Organisational excellence: We simplified our personal data consent process and streamlined how we record patient stories to ensure that the lived experiences of our community are captured accurately and securely to inform future work.
Progressing Research: We coordinated a series of upcoming meetings with international researchers and pharmaceutical companies, which supports better informed decisions for people with PSC, research, or care. This groundwork helps keep PSC research focused on the primary needs of the patient community.
Progressing Research: We reviewed and contributed to scientific abstracts and posters for the upcoming EASL international liver congress, which strengthens the quality of future research for people with PSC, research, or care.
Progressing Research: We engaged with the MHRA to prepare for the upcoming national consultation on rare disease therapies, representing PSC patients in the wider community. Maintaining this direct dialogue ensures our organisation is prepared to respond formally and protect the interests of those living with PSC
Improving Care: We presented about what it is really like to live with PSC to gastroenterologists This first-hand insight equips healthcare professionals to better understand the day-to-day challenges of PSC.
Income Generation: We secured a place in the prestigious Big Give Small Charity Week match-funding campaign, so that we can maximise future donations from our supporters as every donation between 22 and 29 June will be doubled!
Progressing Research: We recruiting for a research and advocacy officer to expand our core team. This additional capacity ensures we can better support scientific studies and represent the patient voice at every level.