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UK-PSC Study Day

28/10/2019
UKPSC logo

UK-PSC held a Study Day in Leeds on 25 October to educate healthcare professionals and researchers about PSC, its care and update on the latest PSC research.

NHS Organ Donor Register Reaches 25-Year Milestone

25/10/2019
organ donation register 25 year milestone

As NHS Organ Donor Register reaches its 25th anniversary, there are now nearly 25 million people on the NHS Organ Donor Register and more than 20,000 lives have potentially been saved or transformed thanks to its introduction.

Help Improve Care for Young People

23/10/2019
RCPCH&US logo Improve care for young people

Chance for the under 25s to help choose the 2020 RCPCH &Us youth led project. Ballot open until 04 November 2019

Electronic Prescriptions to be Introduced Nationally from November 2019

19/10/2019
Your medicine prescriptions

NHS to scrap paper prescriptions next month under a plan to save £300m by 2021.

Liver Transplantation and PSC video

14/10/2019
Liver Transplantation for PSC Video Dr James Ferguson

We’ve uploaded the latest video from our Information Day at Queen Elizabeth Hospital, Birmingham. This is a great overview of liver transplantation for PSC from Dr James Ferguson.

World Mental Health Day 2019

10/10/2019
World Mental Health Awareness Day

This World Mental Health Day we are highlighting the emotional burden experienced by people with PSC every day.

UK-PSC Quality of Life Update

06/10/2019
UK-PSC logo

In 2016 PSC Support started talking to experts to develop the a disease-specific quality of life measure for PSC. Latest update on progress.

The PSC Wellbeing Study Update

04/10/2019
PSC Wellbeing Study

After identifying that there was a significant impact on emotional wellbeing when living with PSC, yet a lack of psychological support for both patients and their loved ones, PSC Support commissioned research to address this situation. Publication in BMJ.

Registration open for London 2019 Information Day

01/10/2019
PSC Support London Information day

Registrations are now open for our Information Day on 23 November 2019.

Time for Flu Jabs

27/09/2019
Flu vaccination for PSC

It’s time to arrange your flu vaccination. Did you know they are available on the NHS through pharmacies as well as GPs?