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CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.
The Medicines & Healthcare products Regulatory Agency are raising awareness of their Yellow Card Scheme.
A new Phase 3 clinical trial is starting to recruit volunteers across the UK and Europe testing the drug Cilofexor/ GS-9674 in PSC patients.
Today, organisations from all over the world are joining together to raise awareness of cholangiocracinoma.
If you’ve had a liver transplant, please take this 8 minute survey to help us understand the kinds of issues you’ve faced and possible solutions.
We live streamed the presentations yesterday at our Information Day in Wales. Watch now.
Help us find the top ten issues for people with PSC by completing this short survey. We’re using the results to improve services for people with PSC.