Take the Plunge for PSC
Karen, Deirdre, Clare and Susan
Karen, Deirdre, Susan and Clare have got together to raise funds for PSC Support. They are all affected by PSC in different ways and their paths have crossed over the past few years because of PSC.
'Susan is a registered nurse with 45 years of experience behind her, she was also a Trustee for PSC Support in the past. Karen is Susan’s eldest daughter, a talented freelance hairdresser also studying herbology. Susan’s son (and Karen’s brother), Callum was diagnosed with PSC and ulcerative colitis (UC) in 2008 at the age of 19. Callum’s health has deteriorated recently and he is now on the liver transplant waiting list. Karen is also going through an assessment to potentially become a live donor for her brother.
When Callum was diagnosed, Susan created links with other people locally in Scotland who were also affected by PSC and met with Clare and her mum, Anne. Clare had already had major abdominal surgery for UC and at the time was very jaundiced and listed for a liver transplant. She waited a phenomenal 10 days for her transplant and was back at work within 3 months. Since her transplant she has taken on the British Transplant Games and takes every opportunity to promote organ donation. She is a total inspiration to us all. Although Clare has done really well physically, holding down a busy job as a Paralegal and enjoying horse riding, unfortunately PSC has returned in her new liver.'
Deirdre’s daughter, Darragh, was diagnosed with UC and PSC when she was 14 years old. They both joined the PSC Support Facebook group and linked up with Susan. Darragh is very creative and has travelled to and lived in South America, but is now hoping to study at Edinburgh’s Queen Margaret University to enhance her opportunities in the creative industry. PSC and UC are, however, causing Darragh some health challenges at the moment.
We all agree that a cure needs to be found for PSC. It is such a complex and debilitating disease, affecting both the physical and mental health of people living with it. In an effort to help aid research to find a cure, we have organised some fun fundraising events for PSC Support. Some amazing friends have also contributed and added to our fundraising pot.
Our fundraising events
Friends and family sponsored the crazy ‘Christmas Crackers’, Karen and Deirdre, who plunged themselves into the sea at Portobello beach in Edinburgh at dawn on Christmas Day 2020.
We also raffled approximately £2,000 worth of gifts that were generously donated locally. These included beauty and spa treatments, hairstyling appointments, a herbal kitchen gift box, Asda vouchers and many more luxury surprises.
As Deirdre and Susan work together in a Primary Care setting, they also held a coffee morning where they sold some of the raffle tickets.
A few creative friends also very kindly assisted the fundraising by selling homemade candles and a unique grid, selling squares for £2 each where people had the chance to win £100 worth of vouchers for Temple Spa treatments, as well as £100 going to PSC Support. We cannot thank everyone enough for their individual contributions.
How do I start fundraising?
First of all, thank you for wanting to fundraise for us! Start off by requesting one of our free fundraising packs. They have everything you need to get started, including fundraising ideas and resources to help you along the way!
Where does my money go?
When you donate or fundraise for PSC Support, every penny counts.
PSC Support is the UK's only PSC charity and we're tirelessly working to improve the lives of people affected by PSC.