Rare Disease
June 2026 Research Roundup
This month, Martine’s Research Round up covers new research findings, how we are driving clinical trials and improving PSC care.
Read MoreExpert Round-Table To Improve Care
PSC Support hosted an expert round table to design an ideal NHS PSC care pathway.
Read MoreGroundbreaking PSC Genetics Research – Dr James Sun
How early-stage seed funding from PSC Support acted as the ultimate springboard, helping Dr James Sun secure a prestigious national fellowship to study the genetic drivers of PSC in unparalleled depth.
Read MoreTaking the Patient Voice to BSG Live
PSC Support at the British Society of Gastroenterology annual BSG Live! meeting
Read MoreMay 2026 Research Roundup
Read the latest PSC news, including some insights from the EASL 2026 research conference.
Read MoreRedefining Clinical Care: PSC Support Champions Patient-Centred Approaches at International Roundtable
Martine represented PSC Support at an international roundtable at the EASL Congress, advocating for patient-centred clinical trial design.
Read MoreFebruary 2026 Research Roundup
A month of leadership growth, breakthrough research, and new milestones in clinical care.
Read MoreRare Disease Day 2026
From a ‘black box’ to a global movement: how we’re accelerating PSC research.
Read MoreProgress and Plans at the ERN RARE-LIVER Members’ Meeting 2026
Martine Walmsley shares project updates and future goals from the 2026 Prague members’ meeting.
Read MoreNov 2025 Research Roundup
Our November roundup features encouraging Phase II trial updates, new gut-liver research, and UK policy changes to speed up rare disease treatment access.
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