A PhD researcher from Queen's University Belfast is
now recruiting participants from the Republic of Ireland and Northern Ireland. Carers, researchers, advocates and charity representatives are encouraged to take part in their research project.

This project involves a survey that should take no longer than 15 minutes to complete, followed by an optional interview if participants would like to elaborate more on their thoughts and experiences.

There is a prize draw at the end of the survey (£50 Amazon voucher), and participants of the interview will be given a £30 Amazon voucher for an hour of their time.

This research project has been peer-reviewed and has ethical approval from the Faculty of Medicine Health and Life Sciences, Queen’s University Belfast.

The researcher welcomes responses from:

• People living with a rare disease and / or their carers or family members
• Rare disease researchers (clinical, academic, industry)
• Rare disease advocates and / or charity representatives

This survey can be delivered verbally. Please contact raredisease@qub.ac.uk with the subject title ‘Rare Disease Research 2026’ if you wish to access these.

Please see below for the recruitment poster, as well as a link to the Participant Information Sheet.