Improving care – PSC Support

Global PSC Awareness Day 2025

23/10/2025

The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.

This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.

NLOS: Our Response to the Review

29/09/2025

PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.

Use Your Voice to Shape the Future of Liver Transplant Allocation

01/04/2025

As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).

Representing PSC Patients at the ERN RARE-LIVER Annual Meeting

01/02/2025

Martine Walmsley, PSC Support Head of Research Strategy, represented patients with rare liver diseases at the ERN RARE-LIVER annual meeting.

Breaking News from ICR

30/01/2025

Researchers at the Institute of Cancer Research (ICR) and St Mark’s Hospital in London have shared news today that they have developed a test to predict bowel cancer risk in people with inflammatory bowel disease.

First Participant in FARGO Trial

24/07/2024

A PSC Support Trustee has been diagnosed with both PSC and inflammatory bowel disease (IBD). They is receiving weekly poo transplants to treat the conditions in a world first trial.