Improving care
NLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Read MoreUse Your Voice to Shape the Future of Liver Transplant Allocation
As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).
Read MoreRepresenting PSC Patients at the ERN RARE-LIVER Annual Meeting
Martine Walmsley, PSC Support Head of Research Strategy, represented patients with rare liver diseases at the ERN RARE-LIVER annual meeting.
Read MoreBreaking News from ICR
Researchers at the Institute of Cancer Research (ICR) and St Mark’s Hospital in London have shared news today that they have developed a test to predict bowel cancer risk in people with inflammatory bowel disease.
Read MoreFirst Participant in FARGO Trial
A PSC Support Trustee has been diagnosed with both PSC and inflammatory bowel disease (IBD). They is receiving weekly poo transplants to treat the conditions in a world first trial.
Read MoreImportant Patient Survey
Have you ever had a cholangitis attack? If so, please take this important survey today.
Read MoreQuality of Your PSC Care
ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.
Read MoreManaging Your Care
Tips from Dr Andrew Yeoman on managing your healthcare at a time when our healthcare services are under increasing pressure to meet demands.
Read MorePSC Support Vancomycin Statement
Statement from PSC Support about the use of vancomycin in the UK.
Read MoreNew European Guidelines for the care of People with PSC
A summary of the latest PSC care guidelines for Europe.
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