Skip to content

World CCA Day: Tackling Cholangiocarcinoma

17/02/2026

People who have PSC live with a higher risk of developing bile duct cancer (also known as cholangiocarcinoma, or CCA). Although the risk of developing it is low, the worry it causes is huge. CCA is difficult to detect because it mimics PSC and we do not yet have the tools to detect it early, and we don’t know which PSC patients are at highest risk of developing it. This is important, because if it is picked up early before symptoms appear, treatments have the best chance of success.

Read More

Festive Greetings Cards from PSC Support

09/12/2025

Christmas cards not your thing? Good news! This Christmas you can send a festive greeting with a difference. Send one of our eCards to friends and family and donate the postage costs to PSC Support instead. They’ll be delighted with festive cheer and you’ll be helping us improve the lives of people affected by PSC. It’s a win win!

Read More

Global PSC Awareness Day 2025

23/10/2025

The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.

This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.

Read More

Organ Donation Week 2025

03/09/2025

This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.

Read More

Send a Card, Make a Difference for PSC Support

14/11/2024

Send a Card, Make a Difference for PSC Support. This festive season, spread joy while supporting PSC Support’s essential work! With our new cards and e-cards, you can create beautifully personalised greetings for any occasion—each purchase directly helps fund our mission.

Read More

Award-Winning Show “OUTPATIENT” Goes on Tour!

03/10/2024

“OUTPATIENT” is an award-winning solo comedy that explores the fascinating intersection of human fantasies and the fragility of our bodies. Based on Harriet Madeley’s personal experience of being diagnosed with Primary Sclerosing Cholangitis (PSC), the play has captivated audiences since its debut.

Read More