We are working with researchers who are planning a study to:

• diagnose small duct PSC more accurately and more quickly;
• find a way to predict how the disease will develop for those people.

This also affects people who have an uncertain diagnosis of PSC i.e. "We think you have PSC but we are not sure".

If this is you, would you like to join Martine Walmsley and the researcher in a Zoom meeting with 8 or so other patients to talk about this?

The researchers want our views on how important it is to get a definitive diagnosis, and also how happy we are with them accessing our health records to collect information for the study.

The meeting will be at 7pm on Tuesday 16th July. It will be nice and informal, and a chance for us to help them get the plan right for their study. You don't have to be scientifically minded, its your personal thoughts that count!

If you'd like to help and can make the meeting on the 16th, please email Martine at martine@pscsupport.org.uk