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Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
Read the latest updates on the SPRING trial, the NHS 10 Year Health Plan, how we are funding research this year and how PSC Support is influencing real change in research and policy.
Help Drive PSC Research Forward!
There’s never been a more exciting time to get involved in PSC research. We’ve got more clinical trials and research projects happening than ever before – and it’s making a real difference. On top of academic and commercial studies, PSC Support has directly funded over £750,000 of cutting-edge research in just the last two years.
OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.
Run Brighton Marathon 2026 with Team PSC Support Join Team PSC Support at Brighton Marathon! With stunning sea views, a buzzing atmosphere, and thousands of runners lining up on the south coast, Brighton offers a truly unique marathon experience. By running for PSC Support, you’ll be helping fund vital support services and research for people…
The future is bright with next generation changemakers like 10 year old Liyana, who’s turning her mum’s illness into inspiration by raising funds and awareness for PSC Support.
Research Roundup May 2025 Links Learning from PBC Bile Duct Cancer Conference Research YOU’VE funded International Liver Research Conference (with major PSC announcements) Watch Ask the Expert with Dr Trivedi Learning from PBC This month, I attended a meeting of PBC experts in Amsterdam who want to understand what evidence is required to show that…