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Mini Research Update Autumn 2023


PSC Support research – find out what we’ve been up to over the summer

First Mission 2030 Research Announced

Mission 2030

Read about the first Mission 2030 research studies funded by your donations

Itch Study Now Open at John Radcliffe Hospital Oxford


New site looking for volunteers in a study about itch

Positive Early Results From the INTEGRIS-PSC Clinical Trial


Early data from the INTEGRIS-PSC trial is promising

Organ Donation Week 2023

Two women smiling looking at camera, grey hair, pink background with text saying 2 minutes now could save up to 9 lives

Monday 18th September marks the beginning of Organ Donation Week 2023. This year’s campaign hopes to see at least 25,000 people register to become organ donors for the first time.

Dan’s Journey from Diagnosis to Transplant to Recovery

White male with brown hair, smiling flexing biceps while carrying a barrel and covered in mud

Undergoing a liver transplant is a remarkable achievement, yet what follows in its wake? Six months after receiving a new liver, Dan has kindly shared an update on his journey with PSC.

PSC Support Information Day, 30 Sept 2023 – Registration Open!

Sept Info Day Registration Open Oxford

Registration for our upcoming Information Day is now open!

VISTAS Itch Trial – Entry Age Now 16 Years

Vistas Clinical Trial for itch

The age for entry onto this trial investigating a drug for itch has changed from 18 years to 16 years.

Quality of Your PSC Care

ERN RARE-LIVER Survey results

ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.

TCS London Marathon 2024 Charity Place Available


Applications now now closed.