Skip to content

Don't miss important news

Sign up for a digest of the most important news every month.


Latest News

A prediction tool for doctors

08/10/2018

A Prediction Tool for Doctors Predicting risk in PSC: PREsTo Thanks to PSC patients sharing their healthcare data, we are able to learn more about our condition. There is still much more we need to understand to crack PSC, but good news this week is that scientists have been able to create a new prediction toolfor…

A Digital Trustee for PSC Support

10/09/2018

Gary Taylor joins our Board of Trustees.

Opt Out System for Organ and Tissue Donation in England

05/08/2018

Consultation response and Government plans to introduce a new opt out system for organ donation in England from spring 2020.

Patient involvement in clinical services and research

20/06/2018

Wales Hepatology Forum presentation about involving patients.

The impact of colectomy type following liver transplant for PSC

12/06/2018

Colectomies and PSC transplant: end ileostomy compared to ileal-pouch anal anastomosis (IPAA).

National Liver Offering Scheme Introduced

19/03/2018

A new system has been introduced to allocate livers to patients on the liver transplant waiting list.

PSC Support is now a Charitable Incorporated Organisation

28/02/2018

Major constitutional change for PSC Support.

Research begins looking at IBD care after transplant for PSC

25/01/2018

First nationwide audit of IBD care delivery following liver transplantation for PSC.

New guidelines for management of liver blood tests

19/12/2017

New British Society of Gastroenterology (BSG) Guidelines have now been published.

PSC Support responds to EMA consultation on behalf of patients

14/08/2017

The European Medicines Agency is evaluating clinical trial design in PSC.