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Latest News

Birmingham 2019 Information Day

25/04/2019

Programme announced
and registrations now open.

Quality of life for people with PSC

23/03/2019

Please help us ensure PSC patients are being asked the right questions to assess quality of life.

We’re educating liver nurses about PSC

22/03/2019

PSC Support at the British Liver Nurses’ Association conference.

PSC research is a top priority in the UK liver community

11/03/2019

Your survey responses have been acted upon and heard.

Using cannabis to control pain in PSC

05/03/2019

The facts about medicinal cannabis and where to find more information.

Your Medicines Supply After the EU Exit

05/03/2019

What to expect in the event of a no-deal EU Exit and and what to do now.

Rare Disease Day 2019

28/02/2019

Raising awareness online and on radio.

UK Strategy for Rare Diseases

27/02/2019

PSC Support calls for a review of the UK Strategy for Rare Diseases.

Opt-out organ donation system approved

26/02/2019

Organ donation law is changing in Scotland and England.

Help to get active after transplant

22/02/2019

A new online programme from the World Transplant Games Federation was launched today to improve fitness, nutrition, wellbeing and quality of life.