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Latest News

Rare Disease Day 2019

28/02/2019
Rare Disease Day

Raising awareness online and on radio.

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UK Strategy for Rare Diseases

27/02/2019
Baroness Nicola Blackwood Rare Disease Day 2019

PSC Support calls for a review of the UK Strategy for Rare Diseases.

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Opt-out organ donation system approved

26/02/2019
Lets talk about organ donation

Organ donation law is changing in Scotland and England.

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Help to get active after transplant

22/02/2019
Refit for Life

A new online programme from the World Transplant Games Federation was launched today to improve fitness, nutrition, wellbeing and quality of life.

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UK liver patient community is pulling together

05/02/2019
LPTC 05 Feb PSC Support

The Liver Patients’ Transplant Consortium (LPTC) met today for the benefit of liver transplant patients.

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PSC Support works with researchers to improve PSC diagnosis

01/02/2019
Improving PSC diagnosis

We are working with researchers to remove the uncertainty around diagnosing PSC.

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Deemed consent one step closer

01/02/2019
Organ donation and PSC

An opt-out system for organ donation could soon become law.

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Rare liver diseases across Europe

31/01/2019
RareLiver ERN PSC Support

PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee

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Game changer for liver transplantation

18/01/2019
Machine perfusion

Use of machine perfusion machines approved by NICE.

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UK-PSC Risk Scores for PSC

03/01/2019
UK-PSC logo

A new 2 year and 10 year UK-PSC risk score tool for PSC.

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