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Letter from the Rare Liver ERN

18/03/2020
Logo ERN-rareliver

Reassuring update from Professor Ansgar Lohse, coordinator of the RARE LIVER ERN and specialist both in Hepatology and in infectious diseases

COVID-19 and PSC

17/03/2020
Coronavirus 17 March 2020

Important information about PSC and acute cholangitis planning.

COVID-19 Latest Update

16/03/2020
COVID-19 Update

New guidance, ‘vulnerable’ people, social distancing information.

Improving Services for Liver Transplant Patients

11/03/2020
Messages Prehabilitation and Rehabilitation

PSC Support is working with leading transplant clinicians to improve services for patients before and after liver transplant. Read our survey report.

Inflammatory Bowel Disease and COVID-19

10/03/2020
COVID-19 Update

The current COVID-19 recommendations for people with IBD.

Liver Transplant Guidelines

29/02/2020
Liver Transplant Guidelines

Read new transplant guidelines summary and how we’re helping to improve liver transplant services.

Rare Disease Day 2020

29/02/2020

Saturday 29th of February is the 13th international Rare Disease Day.

PSC Support at the Vitality Big Half 2020

27/02/2020

Meet our amazing runners who are taking part in this years Vitality Big Half to raise funds for PSC Support!

Date Announced for Max and Keira’s Law to Come Into Effect

25/02/2020

Today the Government has announced the date that the new opt-out system will come into effect.

Joanna: Cant Afford My Medication

20/02/2020
Prescription Charges Coalition

Thousands with long-term conditions like PSC and IBD have to pay for their prescriptions, while those with conditions like Type-1 diabetes don’t pay a penny. Why?