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October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.
We’re working with researchers to develop tools to measure symptoms and quality of life in PSC.
Share your experiences living with PSC. This important research aims to better understand the symptoms of PSC and how they affect daily life, including social, emotional, and financial impacts. By sharing your experiences, you can help improve knowledge about what it’s really like to live with PSC.
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
Read the latest updates on the SPRING trial, the NHS 10 Year Health Plan, how we are funding research this year and how PSC Support is influencing real change in research and policy.
Help Drive PSC Research Forward!
There’s never been a more exciting time to get involved in PSC research. We’ve got more clinical trials and research projects happening than ever before – and it’s making a real difference. On top of academic and commercial studies, PSC Support has directly funded over £750,000 of cutting-edge research in just the last two years.
OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.