Rare Disease – Page 2

Medicine Development Training

16/06/2019

This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.

Rare Disease Day 2019

28/02/2019

Raising awareness online and on radio.

UK Strategy for Rare Diseases

27/02/2019

Baroness Nicola Blackwood Rare Disease Day 2019

PSC Support calls for a review of the UK Strategy for Rare Diseases.

Rare liver diseases across Europe

31/01/2019

PSC Support attended the ERN annual meeting to represent patients on behalf of the EASL Policy and Public Health Committee