Advocacy
NLOS: Hear the Proposals and Give Feedback
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
Read MoreOrgan Donation Week 2025
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
Read MoreJune 2025 Research Roundup
Read a research update from Martine Walmsley for June 2025.
Read MoreUse Your Voice to Shape the Future of Liver Transplant Allocation
As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).
Read MoreRepresenting PSC Patients at the ERN RARE-LIVER Annual Meeting
Martine Walmsley, PSC Support Head of Research Strategy, represented patients with rare liver diseases at the ERN RARE-LIVER annual meeting.
Read MoreQuality of Your PSC Care
ERN RARE-LIVER survey results have been published. Thank you to the 939 people with PSC who took part in this survey.
Read MorePSC Care Survey 2021
The 2021 PSC Care Survey launched today. Please take 3-4 minutes to complete it to help us improve care, wherever you live.
Read MoreOrgan Donation Week 2021
Organ Donation Week is from 20th to 26th September
Read MoreWe’re Posting our PSC Alert Cards Out to You Again
Our handy wallet sized Alert Cards are available to order once again.
Read MoreImproving Standards in Liver Care
What is IQILS and how is it improving liver healthcare?
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