Advocacy – PSC Support

Global PSC Awareness Day 2025

23/10/2025

The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.

This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.

NLOS: Our Response to the Review

29/09/2025

PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.

NLOS: Hear the Proposals and Give Feedback

21/09/2025

Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.

Organ Donation Week 2025

03/09/2025

This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.

Use Your Voice to Shape the Future of Liver Transplant Allocation

01/04/2025

As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).