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Research Roundup: August 2026

08/09/2026

Latest research updates on post-transplant care, fatigue, $13.6M grant, pregnancy guidance and an incredible Ask the Expert.

ERN RARE-LIVER Workshop

08/09/2026

PSC Support attends ERN RARE-LIVER workshop on rare liver diseases and pregnancy care.

Organ Donation Week 2026

04/09/2026

Organ Donation Week is coming up! Could you share your PSC story? Together we can raise awareness around PSC, highlight the importance of organ donation and encourage people to register their decision and speak to their loved ones.

$13.6 Million PCORI Award Highlights Value of Patient-Led Research into PSC Symptoms

01/09/2026

EMPOWER study: PCORI awards $13.6M to explore group therapy’s role in PSC symptom support.

A Biopsychosocial Approach To Fatigue In PSC

14/08/2026

Biological and psychological factors interact in fatigue, offering new possibilities for targeted management.

Newcastle University Launches Life After Transplant Survey Study

12/08/2026

Newcastle University seeks UK liver transplant recipients to help test new surveys on post-transplant quality of life and healthcare.

Ask the Experts – Towards PSC Treatments

06/08/2026

Register now for a special webinar on Wed 12 August all about the road to effective treatments with three leading PSC experts.

July 2026 Research Roundup

03/08/2026

Read our July Research Roundup.

PSC Support Opens 2026 Research Grant Round

03/08/2026

PSC Support opens its 2026 Research Grant Round, funding Project (£50k) and Seed (£15k) Grants for innovative research into PSC.

Rare Disease Medicine Development Consultation

03/08/2026

PSC Support responds to the MHRA’s new framework, calling for eligibility based on unmet medical need.