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Joanna: Cant Afford My Medication

20/02/2020
Prescription Charges Coalition

Thousands with long-term conditions like PSC and IBD have to pay for their prescriptions, while those with conditions like Type-1 diabetes don’t pay a penny. Why?

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My Life, My Heart Documentary

18/02/2020
Jack documentary on organ donation 2

CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.

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Yellow Card Awareness Week

17/02/2020

The Medicines & Healthcare products Regulatory Agency are raising awareness of their Yellow Card Scheme.

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New Clinical Trial for PSC: Cilofexor

16/02/2020
A-new-clinical-trial-for-psc

A new Phase 3 clinical trial is starting to recruit volunteers across the UK and Europe testing the drug Cilofexor/ GS-9674 in PSC patients.

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Coronavirus Information

14/02/2020

UPDATED 13 Mar 2020 The latest COVID-19 guidance – updated regularly.

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World Cholangiocarcinoma Day

12/02/2020

Today, organisations from all over the world are joining together to raise awareness of cholangiocracinoma.

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Improving Healthcare Services Before and After Liver Transplant – 8 Minute Survey

11/02/2020

If you’ve had a liver transplant, please take this 8 minute survey to help us understand the kinds of issues you’ve faced and possible solutions.

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Newport Information Day Videos

02/02/2020
Nathan R talking about his liver transplant

We live streamed the presentations yesterday at our Information Day in Wales. Watch now.

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Get a PSC Alert Card

29/01/2020
Alert Card Front bright

Get your free PSC Alert Card to help identify and treat acute cholangitis.

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Privacy Policy Update (PP10)

28/01/2020
Related conditions to PSC

Update PP10 to the PSC Support Privacy Policy.

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