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VITTAL Study Summary

01/08/2020
VITTAL Study summary

The VITTAL Study investigated the use of a new technology called NMP to see if it allowed more transplants to safely take place.

Organ Donation and Transplantation Report Published

21/07/2020
Organ Donation and Transplant Activity Report 2019-2020

The latest organ donation and transplant activity report published today

The 6 Cs of Primary Sclerosing Cholangitis

18/07/2020
6cs of PSC graphic 2

The 6Cs that all PSC doctors should be thinking about:
Covert, Cholangitis, Cirrhosis, Colitis, Cancer, CURE

Who is Vulnerable? COVID-19

18/07/2020
Current update COVID-19 and PSC

New guidance for healthcare professionals on which liver disease patients are highly vulnerable

COVID-19 Patient Organisation Toolkit

15/07/2020
Patient Association COVID-19 Toolkit f

A communications toolkit for rare liver patient organisations.

Ask the Expert 6 – Liver Transplant Patient Experience

13/07/2020
Ask the Expert Liver Transplant Patient Experience

This special Ask The Expert session saw patients and family members talking about liver transplant for PSC.

Care of Patients with Liver Disease during the COVID-19 Pandemic

09/07/2020
COVID Lay summary

Care of liver disease patients during COVID-19 – summary of guidance for healthcare professionals (written by PSC Support and EASL).

The PSC Wellbeing Study Update

07/07/2020
PSC Wellbeing Study

Researchers have today published an article based on learning from research funded by PSC Support called the PSC Wellbeing Project.

Ask the Expert 5 – Dr Palak Trivedi is back!

26/06/2020
Ask the Expert Dr Palak Trivedi 2

UPDATED WITH VIDEO! Dr Palak Trivedi answering questions in our Ask the Expert Q&A session this week.

COVID-19 Survey

26/06/2020
Logo ERN-rareliver

Please can you answer a few questions about COVID-19 so we can better evidence the risks to patients?