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Global PSC Awareness Day 2025
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
Read MoreFlu Vaccines this Winter
People with long-term health conditions urged to stay strong and get vaccinated this winter to protect themselves from flu
Read MoreWrite or Update Your Will for Free
October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.
Read MoreBurden of Illness Survey for People with PSC
Share your experiences living with PSC. This important research aims to better understand the symptoms of PSC and how they affect daily life, including social, emotional, and financial impacts. By sharing your experiences, you can help improve knowledge about what it’s really like to live with PSC.
Read MoreNLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Read MoreNLOS: Hear the Proposals and Give Feedback
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
Read MoreUPDATE: Rifampicin Availability in the UK
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
Read MoreOrgan Donation Week 2025
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
Read MoreNew Survey! Endoscopy Research
OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.
Read MoreLiyana’s Loom Bands
The future is bright with next generation changemakers like 10 year old Liyana, who’s turning her mum’s illness into inspiration by raising funds and awareness for PSC Support.
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