Uncategorized – PSC Support

NLOS: Hear the Proposals and Give Feedback

21/09/2025

Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.

UPDATE: Rifampicin Availability in the UK

04/09/2025

Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.

Organ Donation Week 2025

03/09/2025

This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.

New Survey! Endoscopy Research

10/07/2025 |

OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.

Liyana’s Loom Bands

25/06/2025

The future is bright with next generation changemakers like 10 year old Liyana, who’s turning her mum’s illness into inspiration by raising funds and awareness for PSC Support.

London Marathon 2026

01/05/2025

We’ve secured a place for London Marathon 2026! Apply now for a chance to represent #TeamPSCSupport at one of the most popular marathons in the world.

Use Your Voice to Shape the Future of Liver Transplant Allocation

01/04/2025

As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).