Uncategorized – Page 2

Write or Update Your Will for Free

01/10/2025

October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.

NLOS: Our Response to the Review

29/09/2025

PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.

UPDATE: Rifampicin Availability in the UK

04/09/2025

Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.

New Survey! Endoscopy Research

10/07/2025

OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.

Liyana’s Loom Bands

25/06/2025

The future is bright with next generation changemakers like 10 year old Liyana, who’s turning her mum’s illness into inspiration by raising funds and awareness for PSC Support.

London Marathon 2026

01/05/2025

We’ve secured a place for London Marathon 2026! Apply now for a chance to represent #TeamPSCSupport at one of the most popular marathons in the world.

Use Your Voice to Shape the Future of Liver Transplant Allocation

01/04/2025

As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).