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Global PSC Awareness Day 2025
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
Read MoreFlu Vaccines this Winter
People with long-term health conditions urged to stay strong and get vaccinated this winter to protect themselves from flu
Read MoreWrite or Update Your Will for Free
October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.
Read MoreNLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Read MoreUPDATE: Rifampicin Availability in the UK
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
Read MoreNew Survey! Endoscopy Research
OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.
Read MoreLiyana’s Loom Bands
The future is bright with next generation changemakers like 10 year old Liyana, who’s turning her mum’s illness into inspiration by raising funds and awareness for PSC Support.
Read MoreLondon Marathon 2026
We’ve secured a place for London Marathon 2026! Apply now for a chance to represent #TeamPSCSupport at one of the most popular marathons in the world.
Read MoreUse Your Voice to Shape the Future of Liver Transplant Allocation
As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).
Read MoreRegister for our 20K Your Way Challenge 2025
Join #TeamPSCSupport for our 20K Your Way Challenge. Choose your own 20K challenge to take on between 1st – 30th April 2025. Register now.
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