Research
Nov 2025 Research Roundup
Our November roundup features encouraging Phase II trial updates, new gut-liver research, and UK policy changes to speed up rare disease treatment access.
Read MoreOur Big Give Christmas Challenge Video
We’re excited to share something special with you…our Big Give Christmas Challenge video! A huge thank you to everyone who contributed their voices to this video and to every one of you who have already made a donation promise.
Read MoreELMWOOD Clinical Trial Update
Latest results shared at international liver conference.
Read MoreSPRING Clinical Trial Update
Latest results shared at international liver conference.
Read MoreTime to Talk About Bile Duct Cancer Risk in PSC
Patient survey results shared at major liver conference.
Read MoreOct 2025 Research Roundup
A look at our recent visit to Belfast for the BASL conference and Information Day
Read MoreGlobal PSC Awareness Day 2025
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
Read MoreSep 2025 Research Roundup
Read about our latest research activities.
Read MoreAssessing Quality of Life in PSC
We’re working with researchers to develop tools to measure symptoms and quality of life in PSC.
Read MoreBurden of Illness Survey for People with PSC
Share your experiences living with PSC. This important research aims to better understand the symptoms of PSC and how they affect daily life, including social, emotional, and financial impacts. By sharing your experiences, you can help improve knowledge about what it’s really like to live with PSC.
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