Burden of Illness Survey for People with PSC
Share your experiences living with PSC. This important research aims to better understand the symptoms of PSC and how they affect daily life, including social, emotional, and financial impacts. By sharing your experiences, you can help improve knowledge about what it’s really like to live with PSC.
Read MoreNLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Read MoreNLOS: Hear the Proposals and Give Feedback
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
Read MoreUPDATE: Rifampicin Availability in the UK
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
Read MoreOrgan Donation Week 2025
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
Read MoreJuly 2025 Research Roundup
Read the latest updates on the SPRING trial, the NHS 10 Year Health Plan, how we are funding research this year and how PSC Support is influencing real change in research and policy.
Read MoreVolunteer Research Admin Support Role
Help Drive PSC Research Forward!
There’s never been a more exciting time to get involved in PSC research. We’ve got more clinical trials and research projects happening than ever before – and it’s making a real difference. On top of academic and commercial studies, PSC Support has directly funded over £750,000 of cutting-edge research in just the last two years.
New Survey! Endoscopy Research
OPINIONS WANTED! Guts UK have launched a survey about the future of research into endoscopy procedures. This is a great opportunity for PSC patients to help shape the direction of research into this important area.
Read MoreBrighton Marathon 2026 Charity Places
Run Brighton Marathon 2026 with Team PSC Support Join Team PSC Support at Brighton Marathon! With stunning sea views, a buzzing atmosphere, and thousands of runners lining up on the south coast, Brighton offers a truly unique marathon experience. By running for PSC Support, you’ll be helping fund vital support services and research for people…
Read MoreJune 2025 Research Roundup
Read a research update from Martine Walmsley for June 2025.
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