My Life, My Heart Documentary
CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.
Read MoreYellow Card Awareness Week
The Medicines & Healthcare products Regulatory Agency are raising awareness of their Yellow Card Scheme.
Read MoreNew Clinical Trial for PSC: Cilofexor
A new Phase 3 clinical trial is starting to recruit volunteers across the UK and Europe testing the drug Cilofexor/ GS-9674 in PSC patients.
Read MoreCoronavirus Information
UPDATED 13 Mar 2020 The latest COVID-19 guidance – updated regularly.
Read MoreWorld Cholangiocarcinoma Day
Today, organisations from all over the world are joining together to raise awareness of cholangiocracinoma.
Read MoreImproving Healthcare Services Before and After Liver Transplant – 8 Minute Survey
If you’ve had a liver transplant, please take this 8 minute survey to help us understand the kinds of issues you’ve faced and possible solutions.
Read MoreNewport Information Day Videos
We live streamed the presentations yesterday at our Information Day in Wales. Watch now.
Read MoreGet a PSC Alert Card
Get your free PSC Alert Card to help identify and treat acute cholangitis.
Read MorePrivacy Policy Update (PP10)
Update PP10 to the PSC Support Privacy Policy.
Read MoreTop Ten Issues for People with PSC
Help us find the top ten issues for people with PSC by completing this short survey. We’re using the results to improve services for people with PSC.
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