A sibling’s gift: Bethan and Peter’s story
From trampling their grandma's rhubarb on summer holidays to sharing a liver.
Bethan and Peter had a happy childhood together, spending time outside making messes and enjoying nature. When Peter was diagnosed with PSC as an adult, their family navigated the realities of living with a chronic liver condition and, ultimately, the need for a transplant.
Quick Links
When Pete was diagnosed with PSC, he said to all of us, don't Google this disease. So I, being me, straight away Googled everything I possibly could.
Thankfully I came across the PSC Support website, which was one of the first places where I read about living donors. So without any family knowing what I was doing I found out what Pete's blood group was, I found out what mine was and I had it in my mind that, should it come to it, then I would definitely be up for at least having an assessment for living donation."
Just nine weeks after transplantation, Bethan and Peter sat down with us and shared their journey as a family affected by PSC, and as a living liver donor.
Thank you to Bethan and Peter for sharing their story and reaching out to the PSC community.
Connect with others
Joining our active Facebook group will help you to contact other people affected by PSC, ask questions and talk about living with PSC.
We created the group to provide emotional support and information to people with PSC and their families. We have created this safe space to ask questions and discuss life with PSC.
