Letter to My Organ Donor Family
Nathan, 36, from Pwllheli in Wales had a liver transplant for PSC in 2017.
Letter to Organ Donor Family
Nathan has since written a letter to thank the family of his organ donor, which he has shared in a video with Wales Online.
Our Organ Donation News
NLOS: Hear the Proposals and Give Feedback
Over the past year, NHS Blood and Transplant has been reviewing how deceased donor livers are offered to people needing a liver transplant. Patients, families, and professionals have all shared their views. NHSBT invites you to attend an online webinar to hear the proposals and give your feedback.
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Organ Donation Week 2025
This Organ Donation Week, we’re turning our channels pink to highlight the importance of organ donation, encourage you to register your decision, and share real-life stories of its impact on people with PSC.
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Use Your Voice to Shape the Future of Liver Transplant Allocation
As the only UK patient organisation dedicated to improving the lives of people affected by PSC we know how important it is for your voices to be heard. That’s why we’re sharing an opportunity for you to have your say in the current review of the National Liver Offering Scheme (NLOS).
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Organ Donation Week 2024
This year for Organ Donation Week we’re turning our channels pink and reminding people to register their decision about organ donation.
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Kieron Dyer’s PSC Journey
Footballing legend Kieron Dyer shares his PSC journey, talking diagnosis, life with PSC, liver transplantation and recovery
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James’s Midnight Ride for a Cure
James, Tim and Al’s Midnight Ride for a Cure Pedalling to accelerate progress towards finding a cure for PSC In the early hours of July 5th, 2024, Oxford resident James and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the…
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Organ Donation Week 2023
Monday 18th September marks the beginning of Organ Donation Week 2023. This year’s campaign hopes to see at least 25,000 people register to become organ donors for the first time.
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Dan’s Journey from Diagnosis to Transplant to Recovery
Undergoing a liver transplant is a remarkable achievement, yet what follows in its wake? Six months after receiving a new liver, Dan has kindly shared an update on his journey with PSC.
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NHSBT and BTS Organ Transplantation Patient Information Website
NHS Blood & Transplant, in partnership with the British
Transplantation Society, have launched a new patient information website for organ transplantation.