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Advancing PSC Research: New Funding Awards for 2025
PSC Support announces new research funding, pushing our total Mission 2030 investment to £852,588.
Read MoreJenny & Sophie: Loom Bands, Cakes & Community for Rare Disease Day
To mark Rare Disease Day, Jenny stood up in front of her local church to share her personal experience of living with PSC. Her daughter Sophie was on hand selling and making bespoke loom band bracelets and key chains after being inspired by Liyana.
Read MoreFestive Greetings Cards from PSC Support
Christmas cards not your thing? Good news! This Christmas you can send a festive greeting with a difference. Send one of our eCards to friends and family and donate the postage costs to PSC Support instead. They’ll be delighted with festive cheer and you’ll be helping us improve the lives of people affected by PSC. It’s a win win!
Read MoreHonouring Kieran Metcalfe’s Legacy: Limited-Edition 2026 Charity Calendar
Honouring Kieran Metcalfe’s Legacy Limited-Edition 2026 Charity Calendar Since 2018, Kieran Metcalfe Photography has supported PSC Support through the sale of Kieran’s stunning landscape calendars, raising over £10,000 to help people affected by PSC. His beautiful images brought joy to so many in our community, and each calendar became something many of us looked forward…
Read MoreOur Big Give Christmas Challenge Video
We’re excited to share something special with you…our Big Give Christmas Challenge video! A huge thank you to everyone who contributed their voices to this video and to every one of you who have already made a donation promise.
Read MoreGlobal PSC Awareness Day 2025
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
Read MoreFlu Vaccines this Winter
People with long-term health conditions urged to stay strong and get vaccinated this winter to protect themselves from flu
Read MoreWrite or Update Your Will for Free
October is Free Wills Month – an opportunity to write or update a simple will for free. There’s no obligation to leave a gift, but any legacy you choose to leave helps PSC Support continue providing vital support, information, and research.
Read MoreNLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
Read MoreUPDATE: Rifampicin Availability in the UK
Rifampicin is sometimes prescribed to help manage itching (pruritus) in people with PSC and other liver diseases. We have become aware, through our community, partners and the NHS, that there is currently a national shortage of Rifampicin.
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