Advocacy
Joanna: Cant Afford My Medication
Thousands with long-term conditions like PSC and IBD have to pay for their prescriptions, while those with conditions like Type-1 diabetes don’t pay a penny. Why?
Read MoreImproving Healthcare Services Before and After Liver Transplant – 8 Minute Survey
If you’ve had a liver transplant, please take this 8 minute survey to help us understand the kinds of issues you’ve faced and possible solutions.
Read MoreTop Ten Issues for People with PSC
Help us find the top ten issues for people with PSC by completing this short survey. We’re using the results to improve services for people with PSC.
Read MorePSC Support – A Year in Review 2019
It’s been quite a year for PSC Support, we are proud to share a few highlights from 2019!
Read MoreCalling Liver Transplant Patients!
If you have had a liver transplant, would you like to join our focus group to help a researcher improve outcomes for liver transplant patients?
Read MorePSC Support Champions Digital Healthcare
PSC Support champions Digital Healthcare. Gary Taylor, PSC Support Trustee advocate for PSC patients at the East Midlands and West Midlands Clinical Senates.
Read MoreUK-PSC Study Day
UK-PSC held a Study Day in Leeds on 25 October to educate healthcare professionals and researchers about PSC, its care and update on the latest PSC research.
Read MoreHelp Improve Care for Young People
Chance for the under 25s to help choose the 2020 RCPCH &Us youth led project. Ballot open until 04 November 2019
Read MoreThe PSC Wellbeing Study Update
After identifying that there was a significant impact on emotional wellbeing when living with PSC, yet a lack of psychological support for both patients and their loved ones, PSC Support commissioned research to address this situation. Publication in BMJ.
Read More2019 Research Survey Results
Results published from the PSC Support Survey (full report to follow).
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