Advocacy
June 2026 Research Roundup
This month, Martine’s Research Round up covers new research findings, how we are driving clinical trials and improving PSC care.
Read MoreExpert Round-Table To Improve Care
PSC Support hosted an expert round table to design an ideal NHS PSC care pathway.
Read MoreTaking the Patient Voice to BSG Live
PSC Support at the British Society of Gastroenterology annual BSG Live! meeting
Read MoreAcute Cholangitis Survey Update
A global survey reveals how acute cholangitis symptom patterns directly predict recovery times.
Read MoreMay 2026 Research Roundup
Read the latest PSC news, including some insights from the EASL 2026 research conference.
Read MoreInternational Survey Highlights Heavy Burden of Itching and Fatigue on Daily Life with PSC
A multinational study reveals the profound impact of itching and fatigue on quality of life, highlighting the urgent need for better treatments.
Read MoreRedefining Clinical Care: PSC Support Champions Patient-Centred Approaches at International Roundtable
Martine represented PSC Support at an international roundtable at the EASL Congress, advocating for patient-centred clinical trial design.
Read MoreBehind the Scenes: How We Are Shaping the Future of PSC Research
We have been busy behind the scenes, co-authoring vital research to turn scientific discovery into real-world tools.
Read MoreGlobal PSC Awareness Day 2025
The 29th of October 2025, marks Global PSC Awareness Day, a day that unites patients, families, clinicians, and researchers around the world to shine a light on PSC.
This year’s theme, “Turning Hope into Action,” is about more than optimism, it’s about progress. Every day, people affected by PSC, along with the medical and research community, are taking steps toward finding effective treatments and, ultimately, a cure.
Read MoreNLOS: Our Response to the Review
PSC Support welcomes the Review and strongly agrees that changes to the NLOS are required in order to ensure equity, access and transparency for patients. We endorse those recommendations which seek to address the disadvantage that PSC patients face under the NLOS.
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