Advocacy
Organ Donation Week 2026
Organ Donation Week is coming up! Could you share your PSC story? Together we can raise awareness around PSC, highlight the importance of organ donation and encourage people to register their decision and speak to their loved ones.
Read MoreRare Disease Medicine Development Consultation
PSC Support responds to the MHRA’s new framework, calling for eligibility based on unmet medical need.
Read MoreJune 2026 Research Roundup
This month, Martine’s Research Round up covers new research findings, how we are driving clinical trials and improving PSC care.
Read MoreExpert Round-Table To Improve Care
PSC Support hosted an expert round table to design an ideal NHS PSC care pathway.
Read MoreTaking the Patient Voice to BSG Live
PSC Support at the British Society of Gastroenterology annual BSG Live! meeting
Read MoreAcute Cholangitis Survey Update
A global survey reveals how acute cholangitis symptom patterns directly predict recovery times.
Read MoreMay 2026 Research Roundup
Read the latest PSC news, including some insights from the EASL 2026 research conference.
Read MoreInternational Survey Highlights Heavy Burden of Itching and Fatigue on Daily Life with PSC
A multinational study reveals the profound impact of itching and fatigue on quality of life, highlighting the urgent need for better treatments.
Read MoreRedefining Clinical Care: PSC Support Champions Patient-Centred Approaches at International Roundtable
Martine represented PSC Support at an international roundtable at the EASL Congress, advocating for patient-centred clinical trial design.
Read MoreBehind the Scenes: How We Are Shaping the Future of PSC Research
We have been busy behind the scenes, co-authoring vital research to turn scientific discovery into real-world tools.
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