Posts Tagged ‘Rare Disease Day’
Jenny & Sophie: Loom Bands, Cakes & Community for Rare Disease Day
To mark Rare Disease Day, Jenny stood up in front of her local church to share her personal experience of living with PSC. Her daughter Sophie was on hand selling and making bespoke loom band bracelets and key chains after being inspired by Liyana.
Read MoreJenny is Fundraising for PSC Support Through her Business
Jenny is donating 10% of the purchase price of stationery, cards and craft kits to PSC Support until 07 March
Read MoreRare Disease Day 2021
We want a world without PSC.
Rare Disease Day is on Sunday 28th February. We’re proud to support the rare disease community on this important day.
Read MoreRare Disease Day 2020
Saturday 29th of February is the 13th international Rare Disease Day.
Read MoreRare Disease Day 2019
Raising awareness online and on radio.
Read MoreUK Strategy for Rare Diseases
PSC Support calls for a review of the UK Strategy for Rare Diseases.
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