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COVID-19 Patient Organisation Toolkit

15/07/2020
Patient Association COVID-19 Toolkit f

A communications toolkit for rare liver patient organisations.

Ask the Expert 6 – Liver Transplant Patient Experience

13/07/2020
Ask the Expert Liver Transplant Patient Experience

This special Ask The Expert session saw patients and family members talking about liver transplant for PSC.

Care of Patients with Liver Disease during the COVID-19 Pandemic

09/07/2020
COVID Lay summary

Care of liver disease patients during COVID-19 – summary of guidance for healthcare professionals (written by PSC Support and EASL).

The PSC Wellbeing Study Update

07/07/2020
PSC Wellbeing Study

Researchers have today published an article based on learning from research funded by PSC Support called the PSC Wellbeing Project.

Ask the Expert 5 – Dr Palak Trivedi is back!

26/06/2020
Ask the Expert Dr Palak Trivedi 2

UPDATED WITH VIDEO! Dr Palak Trivedi answering questions in our Ask the Expert Q&A session this week.

COVID-19 Survey

26/06/2020
Logo ERN-rareliver

Please can you answer a few questions about COVID-19 so we can better evidence the risks to patients?

How Would You Like Your News?

24/06/2020
Newsletter survey web

Please take 2-3 minutes to tell us how we can improve the news we share with you.

Shielding Update for England

22/06/2020
Current update COVID-19 and PSC

Shielding update for England

Liver Perfusion Could Save 7 in 10 Rejected Donor Livers

17/06/2020
Machine perfusion

New research from the University of Birmingham reveals results of clinical trial about machine perfusion technology.

Ask the Expert 4 – Dr Andrew Yeoman Returns

15/06/2020
Ask the Expert Andrew Yeoman

Dr Andrew Yeoman joins us again on Thursday 18th May at 5pm (UK).