Testimonials
'Thank you. I learned more today than I have in the past 7 years I have had PSC. I wanted to know about PSC research and what my options are for symptoms.'
John: PSC patient, 2018
'Thanks to all involved. Being able to speak with others who 'get ' it has literally changed my whole outlook. '
Fiona: mother of PSC patient, 2016
'I was worried about going because I didn't know anyone, but I drove through the floods and made it to Oxford. My husband said I came back a different person. Everyone was so friendly and I met people who had had liver transplants living full lives. It wasn't what I expected but it was exactly what I needed after being diagnosed earlier that year.'
Martine: PSC patient (from 2007)
'Thank you! Thank you! Thank you!'
Jed: rPSC patient, 2018
We hold PSC Information Days in different UK locations throughout the year. Our information days are relaxed and informal and anyone affected by PSC (over the age of 16) is welcome. Each event gives you the opportunity to attend talks and interactive sessions led by PSC experts and people living with PSC. They are also an excellent opportunity to meet and connect with other people affected by PSC. These events are free to attend but you must register to secure a place.
Don't miss the announcement about our next Information Day.
Ask the Expert Q&A Sessions
PSC experts are giving you the opportunity to ask questions about PSC from the comfort of your own home.
The 'Ask the Expert' sessions take place live on Zoom. You don't need to have a Zoom account to take part but you do need to register in advance to join.
What's next?
Join us for an interactive and informative session about the Asp-PSC Trial. This clinical trial is investigating whether people with both PSC and IBD who take aspirin have a lower risk of developing a PSC-related cancer and a lower risk of needing a liver transplant.
Mon 2 March 2026
Time: 7pm (London)
