We support researchers to plan and deliver meaningful community involvement and engagement in health and care research. Please complete the short form below so we can understand your project, what input you are seeking, your timescales, and whether the request is suitable for PPIE support. This helps us review enquiries efficiently and respond with the most appropriate next steps.
Our Patient Panel Pool
Our Patient Panel Pool is a group of people affected by PSC who have expressed an interest in supporting research and related activities. This includes people living with PSC and close family members, who can offer lived-experience insight to help shape study design, review materials, comment on acceptability and feasibility, and support other relevant PPIE activities. Where appropriate, we can draw on this pool to identify contributors for specific patient panels matched to the needs of a project.
How we may be able to help
We may be able to support researchers with:
- reviewing study plans and research ideas
- commenting on feasibility and acceptability
- reviewing participant-facing materials
- gathering lived-experience input through small patient panels
- advising on recruitment and retention approaches
- helping make research communications clearer and more accessible
Before you submit a request
To help us review your enquiry, it is useful if you can tell us:
- what stage your project is at
- what input you are looking for
- your timeline or deadline
- whether you have budget for PPIE activity, including contributor payment and expenses
Early requests with a clear purpose and realistic timescales are usually easier to support effectively.
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Important note
Our support is focused on PPIE activity rather than participant recruitment, unless explicitly agreed. Submitting a form does not guarantee that we will be able to support every request, but it will help us review your enquiry and advise on possible next steps.
What happens next
Once we receive your enquiry, we will review the information provided and contact you to discuss whether your request is suitable, what support may be possible, and any practical considerations such as scope, timelines, and budget if applicable.
FAQs
What support can PSC Support offer?
We may be able to support PPIE activities such as reviewing research ideas, commenting on study design, reviewing materials, and gathering lived-experience input through small patient panels.
Who is in the Patient Panel Pool?
The pool includes people living with PSC and close family members who have expressed an interest in supporting research and related activities.
When should I get in touch?
As early as possible. Early requests are usually easier to support and more likely to allow meaningful input.
Can you help recruit study participants?
Our support is focused on PPIE rather than participant recruitment, unless explicitly agreed.
Do I need a budget?
Ideally, yes. It is good practice to plan for contributor payment, expenses, and any support needed to deliver the activity well. If you do not yet have a budget, please include this in your request.
Can you support every request?
Not always. We review each request individually and will consider suitability, timelines, and whether we can identify appropriate contributors.
What happens after I submit the form?
We will review your enquiry and contact you to discuss possible next steps.