PSC Support is the only UK patient organisation dedicated to improving the lives of people affected by primary sclerosing cholangitis (PSC)
We provide patients and families with high-quality, accessible information and the support they need; we collaborate with healthcare providers to improve clinical care; we shape and fund critical research so that we can live in a world without PSC.
Turning Ambition into Action in 2026:
Our Fortnight in Focus
At PSC Support, we want a world without PSC. We work tirelessly behind the scenes to drive research and improve lives. Here is a snapshot of what we've been up to:
Progressing Research: We supported a major research funding application to help secure the resources needed for high-quality studies into PSC treatments. This vital work ensures that promising scientific ideas have the backing they need to become the breakthroughs of tomorrow.
Improving Care: We attended the British Association for the Study of the Liver (BASL) Immune Special Interest Group meeting to stay at the forefront of clinical advances. By focusing on areas like transition care for young people, we ensure our future work is perfectly aligned with the evolving needs of the PSC community.
Progressing Research: We championed the use of new tools that help doctors better understand how PSC affects daily wellbeing. By focusing on these patient-reported outcomes, we are ensuring that future clinical trials measure the symptoms that matter most to our community.
Building Partnerships: We met with national regulators to ensure that patient symptoms are officially recognised when new medicines are being assessed. This advocacy is vital for making sure the patient voice directly influences whether new PSC treatments are approved for use.
Organisational Excellence: We explored how emerging technologies like AI can be used to spot liver changes earlier. Staying at the forefront of innovation supports our strategic goal to turn scientific discoveries into faster diagnoses and better treatments.
Improving Care: We worked with our helpline nurse to improve our helpline services and digital learning, ensuring every patient gets expert support when they need it.
Empowering our Community: We updated our website with the latest findings from our funded research programmes. By turning complex scientific breakthroughs into accessible information, we ensure you stay informed about the progress your donations are making possible.
Organisational Excellence: We analysed our social media reach to ensure our health information and research updates are reaching as many people as possible. This helps us grow our community and ensures that no one has to face a PSC diagnosis alone.
Help us find a breakthrough in PSC research
At PSC Support we are doing everything we can to find effective treatments for PSC. Check out our new research plans to dramatically increase the research funding we offer and find out how you can help.
Watch the Mission 2030 tree fill with colour as we fund more PSC research.
