Quality of Life in PSC Study Recruiting Now
Living with PSC? Your experience matters!
Ryan James from the University of Hertfordshire is conducting an important study to understand the challenges of living with PSC and develop a tool to improve patient care.
Who can take part?
- Aged 18+
- Diagnosed with PSC
What’s involved?
A confidential, one-on-one interview you can do from home.
Your voice can help shape the future of PSC care and improve support for patients worldwide.
Interested? Click here to learn more!
Hey! Haven't I heard about this study before?
Those of you who have had PSC a while may recall that this project began in 2016/17, funded by the PSC Support and British Liver Trust.
Elena Marcus carried out the first stage of the research, and interviewed people in the UK about their quality of life and opinions about the questions needed to assess quality of life in PSC.
Ryan James from the University of Hertfordshire is now working on validating those original questions more widely in the UK and internationally. He is doing this as part of his PhD.
The steering group for the study includes PSC Partners, PSC Support and the British Liver Trust, and the study continues to be funded by the original 2016/17 funding with additional support from the University of Hertfordshire.