Leadership Update
Leadership Update
PSC Support new co-leaders
We are pleased to share that Martine Walmsley and Mark Chatterley are now leading the charity. Together, they bring a wealth of experience and a shared commitment to our mission of improving the lives of everyone affected by PSC.
Martine has been a driving force within the PSC community for many years, most recently serving as Head of Research Strategy. Her deep understanding of the patient experience and her dedication to research advocacy have been instrumental in shaping our work. Mark joins her in this leadership role, bringing expertise that will help us build an organisation that can accelerate our progress toward better treatments and, ultimately, a cure.
Under their leadership, PSC Support will continue to focus on our core priorities: funding vital research, providing evidence-based information, and ensuring the patient voice is at the heart of everything we do.
Turning Ambition into Action in 2026:
Our Fortnight in Focus
At PSC Support, we want a world without PSC. We work tirelessly behind the scenes to drive research and improve lives. Here is a snapshot of what we've been up to:
Organisational excellence: We simplified our personal data consent process and streamlined how we record patient stories to ensure that the lived experiences of our community are captured accurately and securely to inform future work.
Progressing Research: We coordinated a series of upcoming meetings with international researchers and pharmaceutical companies, which supports better informed decisions for people with PSC, research, or care. This groundwork helps keep PSC research focused on the primary needs of the patient community.
Progressing Research: We reviewed and contributed to scientific abstracts and posters for the upcoming EASL international liver congress, which strengthens the quality of future research for people with PSC, research, or care.
Progressing Research: We engaged with the MHRA to prepare for the upcoming national consultation on rare disease therapies, representing PSC patients in the wider community. Maintaining this direct dialogue ensures our organisation is prepared to respond formally and protect the interests of those living with PSC
Improving Care: We presented about what it is really like to live with PSC to gastroenterologists This first-hand insight equips healthcare professionals to better understand the day-to-day challenges of PSC.
Income Generation: We secured a place in the prestigious Big Give Small Charity Week match-funding campaign, so that we can maximise future donations from our supporters as every donation between 22 and 29 June will be doubled!
Progressing Research: We recruiting for a research and advocacy officer to expand our core team. This additional capacity ensures we can better support scientific studies and represent the patient voice at every level.