Amy Runs for Ben
Amy Runs for Ben: Raising Awareness and Funds for PSC Support
"My partner Ben suffers from the incredibly rare disease called Primary Sclerosing Cholangitis (PSC). Less than 10,000 people in the UK are thought to have this disease. When PSC is active, the immune system begins to 'attack' the bile ducts causing them to harden and narrow, making it hard for bile to drain properly, ultimately leading to liver failure.
Ben found out he had PSC when he was just 21 years old.
His PSC diagnosis was detected secondary to his new Ulcerative Colitis diagnosis. It was an incredibly difficult time for him and he was provided with no emotional support other than being signposted to the charity PSC Support.
I met Ben a few years after his PSC diagnosis. Initially, we both struggled to have conversations about this condition and where this may take us in future, however we now find comfort knowing advancements in medicines are fast growing.
There is currently no cure or treatment and many people with this disease will need a liver transplant at some point in their life.
I am running the AJ Bell Great Scottish Run, Half Marathon in Glasgow in October this year! Since signing up to this, I have decided to raise awareness, and hopefully some money for PSC Support, the only UK charity dedicated to PSC, which funds research, provides information and support including a helpline and events and advocates for those affected by the disease."
