Highest Ever Number of Organ Donors Last Year
The annual Organ Donation and Transplantation Activity Report from NHS Blood and Transplant reports was published his month for the year 2018/19.
Liver Patients’ Transplant Consortium Meeting
Liver patient groups met today to discuss liver transplant related issues and developments.
Maxine Presents the Patient Perspective to Liver Transplant Nurses
Maxine was recently invited to talk at the South West Liver Nurses study day.
Special Interest Group for Immune-Mediated Liver Disease
PSC research priorities presented at the BASL Immune-Mediated Liver Disease Special Interest Group.
Lancet Commission Survey
Help improve standards of care for rare liver disease patients and attitudes towards liver disease.
Birmingham Information Day June 2019
PSC Support held their 2019 Birmingham Information Day on the 22nd June at the Queen Elizabeth Hospital.
Taking Part in Research
New website launched focusing on clinical trials and taking part in research
Medicine Development Training
This week, Maxine, PSC Support’s Programme Development Officer, has been extending her knowledge in this area with EURORDIS, the European patient organisation for rare diseases.
Cancer Prevention Survey Results
Survey results published: reducing the risk of cancer is important to people affected by PSC and they are interested in helping reduce the risks of PSC-related cancers.