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My Life, My Heart Documentary

18 February 2020

CBBC have produced a documentary called My Life, My Heart, which follows the story of Jack, now aged 13, while he waited for and eventually received a heart transplant.

Yellow Card Awareness Week

17 February 2020

The Medicines & Healthcare products Regulatory Agency are raising awareness of their Yellow Card Scheme.

New Clinical Trial for PSC: Cilofexor

16 February 2020

A new Phase 3 clinical trial is starting to recruit volunteers across the UK and Europe testing the drug Cilofexor/ GS-9674 in PSC patients.

Coronavirus Information

14 February 2020

UPDATED 13 Mar 2020 The latest COVID-19 guidance – updated regularly.

World Cholangiocarcinoma Day

12 February 2020

Today, organisations from all over the world are joining together to raise awareness of cholangiocracinoma.

Improving Healthcare Services Before and After Liver Transplant – 8 Minute Survey

11 February 2020

If you’ve had a liver transplant, please take this 8 minute survey to help us understand the kinds of issues you’ve faced and possible solutions.

Newport Information Day Videos

02 February 2020

We live streamed the presentations yesterday at our Information Day in Wales. Watch now.

Get a PSC Alert Card

29 January 2020

Get your free PSC Alert Card to help identify and treat acute cholangitis.

Privacy Policy Update (PP10)

28 January 2020

Update PP10 to the PSC Support Privacy Policy.

Top Ten Issues for People with PSC

27 January 2020

Help us find the top ten issues for people with PSC by completing this short survey. We’re using the results to improve services for people with PSC.